Parenting a child with a disability comes with unique challenges, but it also brings moments of profound growth, gratitude, and resilience. In this interview, we sit down with a devoted mother whose daughter, Darine, lost her vision at a young age. Despite the hardships, Darine’s story is one of courage, positivity, and deep faith.

Through the unwavering support of her family and community, Darine continues to thrive, proving that disabilities do not define a person’s potential. From overcoming barriers in education to embracing her faith as a source of strength, Darine’s journey is a testament to the power of perseverance and gratitude. Her story offers inspiration to other parents navigating similar paths and sheds light on the misconceptions surrounding low vision.

Join us as we learn about Darine’s experiences, the challenges she and her family have faced, and the vital role that Dar-us-Sakina (DUS) has played in fostering her growth and independence

Can you share a little about your child and their journey with low vision?

Darien’s journey with no vision is a difficult one full of challenges, through them she has grown to be a brave, positive and thankful Muslim.

When did you first realize your child had low vision, and what was that experience like for you as a parent?

Darine was born with normal vision, but at 4 months she got a high fever and became very sick. She was hospitalized for 4 months and at the age of 8 months she lost her vision. When I learned about her condition I was very sad but I turned to Allah and He blessed me. It was very difficult for me as her mother to get treatment for my child, but I did not give up and I am still pursuing recovery for Darine.

What are some challenges your child faces in daily life, and how do they navigate them?

Actually, everyone around us treats Darine and I with kindness and care. Challenges are an ongoing part of life. There were several challenges that we faced after we came to the US. Last year I encountered some challenges with the school; one of which was to get aid to be with Darine all the time. In the beginning the school refused but I stood up for my daughter’s rights and got the services for her. I also was able to get the bus to drop her in front of our house.

What resources or support systems have been the most helpful for your child and your family?

First of all DUS and ISGH has provided us with the support that we need. In particular DUS’s workshops and events helped my daughter to integrate with the community and talk to others although there are different types of special needs. I am very thankful to God that DUS helped my daughter and to come out and be part of a wonderful community.

How has Dar-us-Sakina (DUS) played a role in supporting your child’s development and independence?

The workshops that DUS offer are very beneficial. Although there is a bit of a language barrier, I understand that these workshops provide resources and solutions to parents and children. This brings us hope and comfort.

What are some misconceptions about low vision that you wish more people understood?

Having a disability does not mean that a person cannot live up to their potential, learn and have fun. Children with disabilities can learn, have fun and grow to be successful.

What advice would you give to other parents of children with low vision who are just beginning this journey?

First of all to encourage our children to be grateful and positive despite their disability. To see their disability as an asset and accept it with grace. Last time we went to the doctor a beautiful thing happened. Although the doctor told me in a soft voice that he feels sorry Darine will not be able to see again, Darine heard him and told the doctor “why are you sorry? Don’t you know that being blind is a blessing. If I was able to see like the others, God would not show me beautiful dreams. Do you know that every few days God sends me people at night who take me to Jannah. They tell me this Jannah in front of you. I can see the colors of the sky and sea blue, I can also see the color of Jannah green. They tell me to choose whatever you love, because you are grateful, anything you have been deprived from you will find with Allah.” 

Second connect your children with their deen, Darine learns Quran and she reaches Surah Al-Mujadila, she also learns about the prophet’s Seerah, peace and blessings be upon him and she performs salah.

What does Darine want to be when she grows up?

Darine wants to learn and get her diploma. She wants to become a Quran teacher in the future in sha Allah.

February 27, 2025
Jami Sabety-Atto and
Suha Beydoun